Going home, Round 2

We heard back from Denver! Dr. Gelfand, our pulmonologist from this week, read Dr. Deterding's email response to me this morning. (Dr. Deterding is the nation's expert on NeHi in Denver). She reviewed Caroline's CT scan and general history and said it is "atypical" for NeHi and requested more information to help the doctors here. So, it still could be NeHi, but it could be something else too. Caroline's diagnosis today is "chronic interstitial lung disease." Dr. Gelfand suggested we go home for the weekend and see Dr. Rivera, our first pulmonologist here who is the lead on these types of childhood lung diseases, as soon as she returns from her cruise. :-) Dr. Gelfand also gave us exact directions for talking to him directly if we have any problems getting to Dr. Rivera or if Caroline gets worse at home.

For three days Caroline has only required oxygen while sleeping and eating. She still works hard to breathe as seen in her labored and rapid breathing when she's awake. She's not better, but she is stable and we feel confident caring for and monitoring her at home.

We are very excited about being home all together even if it is just for the weekend or week. She will most likely have a bronchoscopy next so this is not our last hospital stay. We have made many friends and recommend this hospital 100%. We are grateful for the care we have received and all of the support our friends and family have provided as well. We know beyond a doubt that Jesus has sustained us and will continue to do so. Thank you from the very bottoms of our hearts for praying for our family. We have felt great peace and comfort and Jett has been a rock star through it all too. He tells us that Jesus makes Him brave and oh how we see it and believe it.

We still have a long road ahead but we know who is leading us and trust Him. I read earlier this week that "understanding will never bring us peace." Peace comes from our right standing with God and leaning NOT on our own understanding. Jesus is the prince of peace because He sets us right with the Father. I think we seek an emotional peace to make us feel better but I don't know that it what we should be seeking. I think we should be seeking the Prince of Peace, Jesus Himself, and then trusting Him, leaning not on our own understanding, and then letting Him direct our path.

Jesus, give us Your perspective. Show us how to love You and Your people more. Keep us aching for eternity with You where all things are made new and whole. Thank you for setting us right with the Father and for being Prince of Peace and Emmanuel, God with us.

We will continue updating this blog even though we are home. Thank you for your continued prayer support!